Tag Archives: caregiver

The Spaces Left Behind

Photo and text by Myra Dumapias, © Myra Dumapias, thelastboardingcall.com

When the reality of aging seems to start surrounding people close to you, you cannot help to start thinking about where you are in life and your own mortality.  We just lost another family member, after her long fight against cancer, last night.  She is the third among my father’s siblings who passed away in  succession within less than three years:  my uncle Virgil on January 16, 2012, my aunt Rebecca on February 23, 2013 and my aunt Fe on October 20, 2014.  My mom Eva, my father’s wife, died earlier this year on March 15.  They each weren’t that old, yet they are part of the generation just ahead of me and it’s heart wrenching to see a generation of siblings start to shrink in number.  

Somehow, it does not matter how old you are.  The moment you start to see your own aunt and uncles, and your own parent, aging and passing away, you suddenly feel that some mysteries that used to lay ahead in the future have already unfolded.  I remember thinking, when I would see photos several years apart, that we all have great genes.  Aging didn’t seem to impact us that much, even just 10 or 15 years ago.  Now, it seems that I’ve been in denial or asleep, like a science fiction character waking up in the 25th century after a cryogenic state.  When I used to watch Buck Rogers as a child, I imagined what the future would be like, but I never imagined what the loss of people would feel like.

I tried to do errands today and everything seemed different.  My aunt Fe’s death is the sixth death in a recent series starting with my cousin Zeke on March 4, 2011, the deaths of my mom, two aunts and my uncle mentioned above, and Dennis, a dear close friend and godfather to my son, on October 31, 2013.  

Death is not just for the elderly.  It can happen to people whom you would never think you would have to say goodbye to so early and you know what?  The loss feels the same, no matter how old a person dies.  The loss of an elderly person should hold the same weight as the loss of someone so young.  Shock factor is not the same as value of life.  Of course, there is more shock for someone younger losing their life, but the loss is the same because the value of the life of an elderly person is not less.


“…You know what?  The loss feels the same, no matter how old a person dies.  The loss of an elderly person should hold the same weight as the loss of someone so young.  Shock factor is not the same as value of life.”


 

You see, with all the deaths in my family and circle of friends, I’ve encountered some statements that did not really help in my grieving:  “But she was sick for a while, right?”,  “She/he was already a grandmother/grandfather?”,  “Were you really that close?”,  or just simply, ”            “, when people do not even acknowledge your loss or say anything what-so-ever and move on with businesses as usual.  

It might be easier for some to find words when a young or generally healthy person suddenly dies.  It is true, when someone passes away at a young age, it is unfair because they did not have as much time on earth.  However, again, the value of life is still the same.  The loss may just be felt more among people of the same generation.  Whether or not we think we can relate to older generations, we at least need to be sure our empathy levels are the same for all losses. If it is not, it is a reflection of a problem in our hearts and as a society.


“Whether or not we think we can relate to older generations, we at least need to be sure our empathy levels are the same for all losses. If it is not, it is a reflection of a problem in our hearts and as a society.”


 

I’m grateful for my aunts and uncles, through whom I catch glimpses of my parents’ childhoods.   I’m grateful for their hearts, their generosity, their strength and their faith.  I’m grateful for all my cousins and my nieces and nephews whom I admire so greatly because I find warmth during times of loss.  I’m grateful for all their love because they have shown that distance in geography and across that line between life and death does not mean distance in the heart.

When an older generation starts to slowly become part of the past, to remain as stories on pages or oral traditions, our daily lives should feel less full, less enriched and a little more shallow.  It’s up to younger generations to fill, season and deepen our lives again.  However, the younger generations must see the vacant seats, hear the echoes of missing voices, and feel the emptiness of spaces left behind.

Thank you to all who help me see that today’s younger generations are more than able to fill the spaces left behind by those who have passed on.

Photo and text by Myra Dumapias, © Myra Dumapias, thelastboardingcall.com

 

This is dedicated to the Dumapias and the Vitug clans. 

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Ten Ways to Honor Sandwich Generation Expats and TCK’s (2 of 2)

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“Generation Sandwich”/Coup de Pouce Magazine, Artist: Isabelle Cardinal Permission obtained from Isabelle Cardinal

 Here are 10 ways we as individuals can honor and support sandwich generation caregivers:

1)  Identify the “sandwich generationers” you cross paths with.  The first step in supporting caregivers is to take the time to consider who they are.  Caregivers, because of the limited time they have in other people’s lives, may not necessarily explain the extent of their caregiving role.  After a certain point in time, the caregiving role may be so ingrained as part of the caregiver’s life that people outside the home don’t even recognize them as caregivers unless the topic naturally came up in conversation.  Bring it up next time in conversations and certain people may come out of the woodwork to speak about what they may have gone through in the past, are about to go through or are currently experiencing.

Some caregivers may think that once they step outside the house, it would be a break for them to not speak much about their experiences unless it is in a private one-on-one setting.  Others may feel that bringing it up is a downer.  This may have to do more with how certain social protocols treat caregiving topics as “personal issues” or “private affairs.”  Society in general also tends to marginalize caregivers and dependent elderly.  The majority of public spaces, such as restaurants for example, are not physically set up to encourage people with disabilities or certain health conditions to be as present as able-bodied persons. (I will further elaborate on this in future writings)

2) Be supportive of the tough choices the “sandwich generationer” makes for themselves and their family.  No matter what anyone may think they know, the truth is every person’s situation is different.   The caregiver and their family members will be the ones who will live with the choices , so it is not in the best interest of the caregiver or their family to promote the choices others may believe to be wiser.  It is helpful to provide feedback, offer another pair of eyes, share ones own applicable experiences and serve as a person to bounce ideas off of, but once the caregiver makes a decision, be supportive of it.  There are reasons why not everyone is consulted in a decision making process.  Chances are there may be aspects of a decision the caregiver believes most cannot fully relate to.  Understand also that there may be a whole side of the situation that you simply don’t know about.  “Sandwich generation” TCK’s or expats especially need the support of other global nomads who can relate to issues of unresolved grief or other issues distinct to a globally mobile childhood or lifestyle.

3) Be personally available to a “sandwich generation” caregiver who may want to share some of their stressful experiences as a way to show they do not have to go through them alone.  Sometimes listening goes a long way.  You don’t have to give advice, especially if you have not been in similar shoes. Just listen and if you feel it would be welcome, encourage a caregiver to open up about how they are doing beyond the “I’m fine, thank you” answers.  Offer genuine attention and time.  Chances are, if you see them for some periods outside the home, the rest of their day or week are probably spent mostly at home.  A nice chat over lunch or a quick one-on-one catch up session to the side of a larger gathering or event helps to reassure a caregiver that someone is there to listen.

If you believe that the caregiver may benefit more from counseling, there are counseling resources available for the expat or TCK caregiver (a page will be added in the near future for such resources upon further research for caregivers with limited income).  However, don’t assume that if you do not offer this help, the caregiver will be fine or that they will go out of their way to reach out to you.

4)  Be careful not to judge or minimize.  This journey is one of the toughest journeys a person can experience in a lifetime for the reasons mentioned above (which touches on just some of challenges).  Each person’s journey is different. While certain aspects of a caregiver’s situation may be similar to another caregiver’s, the entire journey of a person is not the same as another’s.  The context of the timing, family dynamics, circle of support, ability to share tasks with siblings or a spouse, individual need to maintain a career, place in life and many other factors a caregiver is dealing with is never exactly the same as another caregiver’s.  The extent and type of dependency a loved one has on a caregiver can also be extremely different in each situation, as are the financial and other resources available to the family.  Take time to see things from the caregiver’s point of view, and be quicker to find out more before suggesting solutions.

Efforts to “help” others are not effective if they do not address where they are truly at.  See the caregiver as the expert in their own lives (unless for example, by a professional’s judgement, the person’s “actions or potential actions pose a serious, foreseeable, and imminent risk to themselves or others,” a standard in social work practice).  If anyone can take the time to think or say to themselves that other people in the caregiver’s shoes were able to do something differently, they can take the time to speak more to the caregiver and find out why things don’t look the same.   Most importantly, when a caregiver opens up, remember two things – a) believe them the first time and b) treat the trust a caregiver has in confiding in you with utmost respect. 

5)  Understand that the “sandwich generation” role cannot be compartmentalized.  The “sandwich generation” role touches every aspect of a caregiver’s life.  Even though the situation that brought on the dual caregiving role may have come suddenly and has a clear beginning, the end may not be clear or predictable.  The boundary of its impact on the caregiver’s life is not rigid.  A caregiver’s entire life is impacted: Everything from income, to eating patterns, to self-grooming (ie. the distinction between a luxury and a necessity), to sleeping habits, to friendships, to the marriage relationship or dating patterns, to the upkeep of a house, to the competitive edge in the work setting can be affected.  A caregiver needs to take breaks and have distance sometimes to care for themselves so they can be of use to others. However caregiving is not a responsibility one can really set a clear boundary around the way one would with a 9-5 job.  Caregiving requires more flexibilty and even when the caregiver’s role shifts in some major way, their role does not really cease.

6)  Offer help.  This is especially for the single parent caregivers.  Whether one feels qualified or not to help with certain things, offer help where you can.  It may not be obvious what a caregiver needs help with until someone asks.  Offer help in a way the caregiver will understand the offer to be genuine.  Some may be hesitant to ask for fear of not being able to return a favor.  Practical things a “sandwich generation” caregiver can get help with include: getting groceries (of their choice), maintaining a yard, help with fixing house repairs (plumbing or other leaks, electrical wiring, etc.), car repairs or maintenance, errands, etc.  Those with a professional skill, such as carpentry or construction, plumbing, or electrical engineering, or who are lawyers, doctors, social workers, hospice workers, nurses or physical therapists can offer their professional services at a significant discount or for free in recognition of the great hardships of “sandwich generation” caregivers.

I may not be able to convince a reader not already inclined to help others to change their mind, but I will share this: Certain situations don’t have an easy way out and the only reason why certain caregivers are in certain situations is because they chose to brave out the journey and are the only ones around to take responsibility for it.  People who take this level of responsibility deserve help simply because no human being should go through the toughest human experiences alone.  

7)  Expect nothing in return.  Caregivers, especially “sandwich generationers,” may not be in the best position to be as reciprocal as they may have been at a different period in their life or otherwise would be.  Caregivers cherish the support they receive even when a caregiver who may not be able to demonstrate it by spending time with friends or returning a favor.  The caregiver  may not have the luxury of time or money to always reciprocate.  “Sandwich generation” caregivers have to stretch out their resources and time to cover things the average person doesn’t have to budget into their finances or fit into their regular schedule.

For some, this may be hard to hear, but certain favors or gifts may not be reciprocated until the caregiver is in a better position.  This is one factor that can actually lead to a caregiver’s isolation: friends can start to dwindle because caregivers simply aren’t around enough or are able to reciprocate.  TCK or expat caregivers may not even have any friends who are more than acquaintances of casual friends to turn to for help.  Look out for them, even when they aren’t a particularly close friend.

This is simply a personal choice that takes a special heart.  For my readers who help “sandwich generation” caregivers and don’t expect anything in return, know you are serving an army of brave soldiers that face the toughest battles but don’t get enough recognition, special treatment or, especially in the case of expat or TCK caregivers, may not have the support of a “home country” that can provide a safety net for their own future aging.  Thank you!

8)  Assess your work colleague’s credibility with fairness if your colleague is a “sandwich generation” caregiver.  As explained in #5, the caregiving role affects all aspects of a person’s life.  In work relationships, try to translate how the caregiving responsibilities of a person can affect how competitive they can be in comparison to others who more frequently go beyond the extra mile, do things outside their job description or are more flexible.  If a work setting provides the option to work remotely or online, provide ways the caregiver working from home can demonstrate their reliability pertinent to their job role.  Don’t limit such opportunities to colleagues who can be physically present or travel more.  

Perhaps the majority of people at a given work setting have families and responsibilities as well, but remember “sandwich generation” caregivers take on much more than the average head of household.  The credibility or value of a work colleague or employee must include the commitment they demonstrate as a whole person, the bigger picture of their past accomplishments, the quality of their work vs the quantity of times they can be physically present at events, and the skills required not only in practicing their profession, but also managing their time so they can fulfill their duties yet juggle other demanding responsibilities.  

When the skills of a work colleague or employee with a successful track record are applied to the “personal affair” of caregiving, it should not be seen as a compromise to professionalism.  Rather, it should be recognized, honored and respected for the depth of what a person is capable of committing to (often without due recognition).  It is a common myopic perspective about professionalism to marginalize the caregivers and care takers of society or reserve the image of professionalism to people free of nurturing roles or who can place them neatly in a box labelled “private affairs,” which unfortunately affects women more than men(More writings on this topic to follow as well.)

9)  Recognize the single parent “sandwich generation” caregivers.  For every point I make here, remember that there are single parents going through everything I have explained but work with one income and do not have the option of staying at home while a spouse works to make sure the bills are paid.  It is a very difficult journey that requires a level of extreme vigilance to take on this role.  Words are simply not enough to paint the full picture of what single parents in this role go through daily.  Paying the bills on time, making sure any leaks or repairs needed in the house are taken care of, ensuring the car continues to run smoothly, staying on top of doctor appointments and healthy diets for the whole household, and other standard household maintenance tasks, as well as the intricate duties related to caregiving, paying attention to the educational, psychosocial development and other needs of the single parent’s child(ren) AND the overall wellbeing of her/his aging parents must all be accomplished with the budget of a single income earner.  This is not to mention their own needs, including the reality of the necessity to plan for their own aging and retirement.  This is just one side of the picture.  

The single parent in this role must also be able to independently manage the logistics of all of the above in the same amount of time everyone else has, while working to bring in income and doing everything else the average person needs do to for her/his career.  Most employers assign a single type of job role with related duties according to a reasonable work load per employer.  If you picture all the responsibilities of a single parent in a “sandwich generation” caregiving role, it would look like one person operating, managing or supervising all departments of an entire company for a customer base representing three demographics – unpaid for all of the above.  

On top of all of this, the single parent in this role does not have the emotional support a spouse can otherwise provide.   A TCK single parent in this role has an even greater need for emotional support, especially if they start to come to terms with the unresolved grief of their past in different ways through this role.  In an environment that may be void of TCK support or understanding, it can be overwhelming for the TCK single parent who is a “sandwich generation” caregiver.

10) Respect the journey of the family.  Those who are in the position to be personal friends of a caregiver must be understanding when there are occasional family tensions.  Conflict is a normal part of any group setting that forms and develops.  It is understandable that with a family experiencing significant life changes affecting three generations of family members simultaneously, especially under the same roof, certain tensions will come.  In a supportive environment, these tensions will eventually go.  This journey involves different seasons and none of them make a family less worthy of support.  One year, a caregiver may need to quit a job or live with the loved one they are caring for.  Another year, the caregiver may need to prioritize obtaining a certain job or may need to live separately for one reason or another.  

Respecting this journey and the various seasons is to remember that all the family members are just human, have intrinsic human worth and individually deserve to be treated with dignity.  It is truly one of the toughest periods for the elderly persons, the child(ren) in the household and the caregiver(s), and they are all in it out of love for one another.

Source: “The Hindu”

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© Myra Dumapias and The Last Boarding Call, 2014-2018. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Myra Dumapias and The Last Boarding Call with appropriate and specific direction to the original content.

 

Ten Ways to Honor Sandwich Generation Expats and TCK’s (1 of 2)

“Generation Sandwich”/Minnesota Monthly, Artist: Isabelle Cardinal Permission obtained from Isabelle Cardinal

They sacrifice their lives for others.   They are at the front lines, physically, financially, logistically and emotionally, but are often in the shadows socially.  They protect the lives of the most vulnerable, and in the process also become vulnerable.  They are the soldiers that bravely confront one of the toughest battles in life that affect a growing number of people world wide.  They are the caregivers “sandwiched” between caring for their children and caring for aging parents, or “sandwich generation” caregivers.  As I mentioned earlier, expats, global nomads or adult Third Culture Kids in caregiving roles face even more complex situations than non-expat caregivers  and as such”sandwich generation” adult TCK’s or expats likewise face unique challenges that deserve recognition.

The plight of “sandwich generation” caregivers has increasingly become more well known over the last two decades, which witnessed the inclusion of the term in the Oxford English and Merriam Webster dictionaries in 2006, attributed to the work of Joy Abala in the United States. (Her heart behind her work is very similar to mine! It was great to discover her while preparing for this particular post. Read about Joy Abaya’s story here).  

 

“Middle Aged Adults Sandwiched between Aging Parents and Kids,” Source: “The Sandwich Generation: Rising Financial Burdens for Middle-Aged Americans” Pew Research Center

In the U.S., July is recognized to be Sandwich Generation Awareness Month.  Around the world, there have also been some recent discussions about the sandwich generation.

In Britain, there is a surge in the number of people living in large households because of the “sandwich generation, only about two years after the emergence of “sandwich generation” households in studies were noted and expected to continue.

 

“Asia’s Sandwich Generation” Source: “Feeling the Squeeze: Asia’s Sandwich Generation,” Economist Intelligence Unit

 

 

In Australia, where “sandwich generationers” are beginning to feel the squeeze yet their situation is still considered “fairly new,” it is estimated that “people may be missing out on more than $600 million in assistance, largely because of lack of awareness.”   In Asia, Singapore is witnessing the “sandwich generation” population as a fast growing population group.  In a similar manner, South Africa is also seeing a growth in the “sandwich generation.”

 

“How Is Asia’s Sandwich Generation Coping?” Source: “Feeling the Squeeze: Asia’s Sandwich Generation,” Economist Intelligence Unit

The common issues that “sandwich generationers”  deal with range from the financial crisis of rapidly depleting income while supporting three generations of family members, to the emotional toll that come with sudden major life changes and multiple losses (ie. of the caregiver’s career options), to the stresses of watching loved ones’ health statuses decline to the point of dependency,  to the drastic tips in the balance of a caregiver’s circle of support, where she/he receives less and gives more, especially when a loved one’s health progression leads to the caregiver’s increased isolation.

A “sandwich generation” caregiver with a current or dormant globally mobile life faces even more complex issues not just due to the distance between family members that is often a default with expats, but also due to the experience being part of a globally mobile family.  Expats face the potential risk of having no safety net of support and resources at the point of retirement, if expats choose to retire in a country other than their passport or host country to be reunited with their adult children or to settle where they have the most friends and/or relatives.  This creates the context for how a “sandwich generation” caregiver supports her/his parents.  This in turn can impact the caregiver’s own retirement and financial planning for the future.

Adult TCK or expat “sandwich generation” caregivers may have less support than non-TCK or expat counterparts.  Not only may the caregiver be going through this major life change away from friends she/he has established, but may also be wrestling with the question of belonging and sense of isolation common to Third Culture Kids (TCK’s) that the standard support group and average counselor is not prepared to fully support.  The “sandwich generation” caregiver may also still be in the process of working on her/his journey of addressing unresolved grief and multiple losses throughout childhood. If she/he has not even begun it yet, it can be triggered by the mere act of having to relocate to adjust to the parent’s needs because it can closely resemble the pattern of moving for a parent’s career.

Taking on the role of being more of a “giver” than a “receiver” of emotional support can place a “sandwich generation” caregiver who grew up as a TCK at risk for an emotional breakdown, depression, unhealthy coping mechanisms to stressful triggers, psychosomatic health conditions and other factors that can end up as a statistic void of any connection to the deeper journey behind it.

Remember that much of the experiences of TCK’s is still largely unknown, misunderstood or misdiagnosed by counselors or support figures who simply don’t have a deep understanding of the effects of a globally mobile childhood.  In the past decade, international schools have begun to acknowledge and/teach about the experiences of TCK’s.  Programs for military families in the U.S. for example, are now beginning to broaden their understanding of what military children experience.  However, for the most part, until TCK’s themselves take on more leadership roles and are in the decision making positions about programs and resources for TCK’s in various age groups, it is simply not enough.  

The traditional training available for social workers, grounded in similar human development theories used in training for psychologists and counselors, all of whom would serve as mental health resources for “sandwich generation” caregivers is predominantly based on mono-cultural systems and is therefore not fully equipped to help the adult TCK’s or global nomads of this population.

This is where we as individuals, especially TCK’s, other expats and nomads, can step in.  The support for “sandwich generation” adult TCK’s or expats can also come from amongst one another.  While financial planning, counseling and other professional services can be provided by specialists, it does not require a specialist to reach out, understand or offer support to a “sandwich generation” expat or adult TCK.   “Sandwich generationers” are on a very challenging journey that they chose to accept out of a deep tremendous love for their family members.  Caregivers, especially those playing the dual roles of parenting and caring for their own parents, deserve to be honored as valuable and crucial members of society and supported in any way possible.

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© Myra Dumapias and The Last Boarding Call, 2014-2018. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Myra Dumapias and The Last Boarding Call with appropriate and specific direction to the original content.